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* The Japan Muscular Dystrophy Association
* History of the Association
* Organization
* Main Activities
* Finance
The Japan Muscular Dystrophy Association
Muscular dystrophy is a genetic disorder characterized by progressive muscle weakness from muscle fiber degeneration and loss. With disease progression, patients sometimes become wheelchair-bound or bedridden. Most patients eventually need help to meet the needs of daily living. The main activities of the Japan Muscular Dystrophy Association (Corporation) are to promote research to establish the pathogenesis of and find effective treatment for muscular dystrophy, and to provide medical care to the patients and their families so that they can maintain a good quality of life (QOL).
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3-43-11 Minami-Otsuka, Toshima-ku, Tokyo 170-0005, Japan
TEL:(81) 3-6907-3521
FAX:(81) 3-6907-3529

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History of the Association

1964; Started as Japan Society of Parents of Muscular Dystrophy Children
1965; The Society was renamed the Japan Muscular Dystrophy Association at the 2nd annual meeting
1968; The Association was authorized as a corporation (Shadan-Hojin) by theMinistry of Health and Welfare Japan
2013; The association was authorized as a general incorporated association by Cabinet Office
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At the present, there are more than 2,000 members in our association. The main office is located in Tokyo. There are 8 regional block offices of Hokkaido, Tohoku, Kanto, Tokai/Hokuriku, Kinki, Chugoku, Shikoku and Kyushu, which organize unique independent prefectural activities.The association is managed by President MD. Hisanobu Kaiya, 16 directors and 2 inspectors.
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Main Activities
A: Accumulates information on muscular dystrophies available to educate and enlight the disease to patients, their families and public.

(1) The Association organizes an Annual National Meeting, a number of seminars and conferences
(2) The Association publishes a bimonthly journal "Ichinichimo Hayaku (Hoping radical therapy as earlier as possible)" and many educational books of muscular diseases
(3) The Association is a member of World Alliance of Muscular Dystrophy Association (WAMDA)

B: Helps patients to adapt to their daily life and to improve their quality of life (QOL)

(1) The Association supports patients to improve their lifestyle
(2) The Association provides medical seminars, visiting disease evaluation, consultation, camps and helps to be in employment
(3) The Association assists members to obtain or borrow medical equipments including wheelchairs and respirators.
(4) The Association tries to educate medical and social aspects of mucular dystrophy to public and patients.
(5) The Association establishes and administers 4 physical and social training units in Aomori, Niigata, Saitama and Kyoto for non-hospitalized patients.
(6) The Association appeals to the government to design treatment regimens and to improve social welfare.
(7) The Association establishes its homepage providing the recent advance in research works, mdical consultation, and forms mailing lists of the members to exchange their thoughts and knowledge.

C: Promotes research into muscular dystrophy

(1) The Association's great efforts and supports to the Government to establish an research institute for muscle diseases resulted in founding of National Institute of Neuroscience, National Center of Neurology and Psychiatry (NCNP) in 1978.
(2) The Association cooperates research works on the diseases as a member of nationwide research groups of muscular dystrophy organized and sponsored by the Ministry of Health, Labour and Welfare Japan.
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Members' fee is the main source of income of the Association. In addition, subsides from the National Treasury, several foundations, and donations from individuals and some groups greatly contribute to the finance of the Association.
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